30/08/2017 21:18
It is funny as things settle back to routine how fast time goes by. Sadie has continued to have her seizures under control, by putting her back on the meds she was on prior to her relapse. It is interesting this time around because we had a break in time for a year with Sadie on...
09/12/2016 21:07
The great thing about time, is that you forget. You forget the sounds, the actions, all of it, until it comes back. This particular day in November started the same as most days, the mad rush in the morning to get the kids to daycare, and us off to work. My morning had two...
25/09/2015 21:39
Well today we are here, A day we never thought we would get to, Sadie being 2 years seizure free!! I feel a lot of things today, but most of all hopeful. We still are not sure why, if its meds or if its her out growing them, but 2 years ago this day honestly felt like it would never...
03/04/2013 20:55
Ok I know its been awhile for a blog update but here I am! Well the last month has been good. Sadie is the clearest I have seen her in so long. Honestly think the clearest I have seen her in almost two years. I never realized how funny she was! She is so alert, and her speech is better, she is...
21/03/2013 20:51
Well we have had a good few weeks. We had a spell last weekend with seizures. She started on Thursday and had them Thursday and Friday. Her ketones were lower then normal so once they started the amount of seizures didn't really surprise us. We met with Neuro today and we are going to try and...
10/03/2013 20:47
Well we continue on a great path with Sadie. Her clarity is outstanding, I honestly don't remember the last time I saw her like this. She continues to enjoy the diet, we have really gotten pretty good managing it. Sadie's freebee snack is iceburg lettuce, she's allowed 40g a day, and she...
02/03/2013 19:30
Well what can I say, Sadie Rhyno is my hero! Sadie has had a great week, her brightness, clarity, and alertness is so much improved, Blair and I are honestly blown away by the change in her. We went for our one month follow up and even after having seizures on Sunday her appointment was Tuesday and...
25/02/2013 20:19
Well we had a bit of a set back this weekend, we some quite a few seizures starting Saturday morning. It was really upsetting honestly, but we are trying to stay positive and know this doesn't mean that the diet is not working. We know it could take up to 3 months, but it was still upsetting....
21/02/2013 19:21
Well I think the cold finally broke!! My Nana said it best when she saw Sadie on our Sunday visit, that Sadie has the sparkle back in her eyes! Her energy levels are much improved, and she is doing so good on the diet. She is back to feeding herself most of the meal, except the cream which we have...
17/02/2013 08:13
Well its been almost a week since an entry, but wanted to wait till we had a good update. So this week started a bit brutal. Sadie was still so tired, having 3 hour naps, not really wanting to get up at all. This was so frustrating, and honestly we were not even thinking at the begining the diet...
